Pre-Congress Events and Side Meetings

Pre-Congress Events and Side Meetings

You can find an overview of the pre-congress events and side meetings below.

 Monday 2 September 2019
Pre-Congress Events
9:00-11:00
Van Weelde Zaal
MetabERN meeting (MetabERN members only)
11:00-13:00
Van Weelde Zaal
MetabERN: LSD subnetwork meeting (MetabERN members only)
11:00-13:00
Van Rijckevorsel Zaal
MetabERN: AOA subnetwork meeting (MetabERN members only)
12:00-19:00
Plate Zaal
iNTD network meeting (iNTD members only)
13:00-15:00
Hudig Zaal
EHOD steering committee meeting (EHOD steering committee members only)
16:00-18:00
Van Weelde Zaal
EHOD members meeting (EHOD members only)
16:00-18:00
Schadee Zaal
SSIEM Council meeting (SSIEM council members only)
18:00-22:00
Hudig Zaal
ERNDIM Board of Trustees Meeting (ERNDIM Board members only)
 Tuesday 3 September 2019
Pre-Congress Events
9:00-11:00
de Leeuw Kamer
U-IMD meeting (U-IMD members only)
9:30-12:30
Zeelenberg Zaal
GalNet Satelite Symposium (GalNet members only)
9:00-10:30
Willem Burger Zaal
Nutrition and Dietetics session
9:00-9:30The use of body composition as a clinical tool in IEM
Maureen Evans (Royal Children's Hospital, Melbourne, Australia)
9:30-10:00GSD - New treatments; KD/High protein v traditional treatment
Helen Mundy and Jo Gribben (Evelina Children's Hospital, London, United Kingdom)
10:00-10:30Ketogenic diet in Inborn Errors of Metabolism: experience from one center and introduction of Ketogenic PN guideline
Marit Verhagen and Elles van der Louw (Erasmus MC-Sophia Children's Hospital, University Medical Center, Rotterdam, The Netherlands)
10:30-11:00 Coffee Break
11:00-12:30
Willem Burger Zaal
Nutrition and Dietetics session (continued)
11:00-11:30Citrin Deficiency; recent developments
Alex Pinto (Birmingham Children's Hospital, Birmingham, United Kingdom)
11:30-12:0010 year follow up of PKU: implications of dietary therapy on weight management/ metabolic syndrome.
Julio César Rocha (Centro Hospitalar Universitário do Porto, Portugal)
12:00-12:30Evaluation of UX007 in patients with severe LC-FAOD
Professor Vockley (Children's Hospital of Pittsburgh, USA)
11:00-13:30
de Leeuw Kamer
Newborn Screening (NBS) Advisory Board meeting (members only)
9:00-10:30
Juriaanse zaal
Adult morning session: Lifestyle in adults with IMD
9:00-9:30Exercise in adults with IMD
Mark Tarnopolsky (Ontario, Canada)
9:30-10:00Diet, overweight and obesity
Sandra Sirrs (Vancouver, Canada)
10:00-10:30Independence, parenting, non-adherence and psychosocial issues
Fanny Mochel (Paris, France)
10:30-11:00 Coffee Break
11:00-12:00
Juriaanse zaal
Adult morning session (continued)
11:00-11:12Adherence to dietary treatment and psychological outcomes in adults with early-treated Phenylketonuria
Lynne Aitkenhead (London, United Kingdom)
11:12-11:24Diffusion Kurtosis Characterisation of White Matter Abnormalities in Phenylketonuria: A Study of Divergent Siblings, with a Subsequent Analysis in 22 Adults
Sarah C. Hellewell (Sidney, Australia)
11:24-11:36Coping, Health Perception And Pain Are Related To Depressive Symptoms In Fabry Disease
Simon Körver (Amsterdam, the Netherlands)
11:36-11:48Acute neurological decompensation in adults with Tyrosinemia type 1 – an emerging issue?
Elaine Murphy (London, United Kingdom)
11:48-12:00Follow-up of five, non-MELAS phenotype, adult patients with m.3243A>G mutation after kidney transplantation and a review of the literature
Mirian C.H. Janssen (Nijmegen, the Netherlands)
9:00-10:30ERNDIM DPT MEETINGS
9:00-10:30
Mees Zaal
ERNDIM DPT Czech Republic meeting (DPT participants only)
9:00-10:30
Van de Vorm Zaal
ERNDIM DPT France meeting (DPT participants only)
9:00-10:30
Van Rijckevorsel Zaal
ERNDIM DPT Switzerland meeting (DPT participants only)
9:00-10:30
Ruys Zaal
ERNDIM DPT United Kingdom meeting (DPT participants only)
9:00-10:30
Plate Zaal
ERNDIM DPT The Netherlands meeting (DPT participants only)
9:00-10:30
Mees & Van Weelde Zaal
ERNDIM Workshop
10:00-12:00
Hudig Zaal
ETAC Meeting (ETAC members only)
11:00-12:30
Mees & Van Weelde Zaal
ERNDIM Meeting (ERNDIM members only)
11:00-11:30Program to be announced later
11:30-12:00Program to be announced later
12:00-12:30Program to be announced later
13:00-14:00Program to be announced later
12:30-14:00Lunch Break
12:45-13:45
Ruys Zaal
Adult Group Board Meeting (Adult Group Board members only)
12:45-14:00
Hudig Zaal
SSIEM Dietitians Group Committee meeting (SSIEM DG-members only)
 Wednesday 4 September 2019
PRE-CONGRESS EVENTS & SIDE MEETINGS
7:45-8:45
Keuris / Schatkamer
ICIEM Organising Committee (IOC) meeting
10:30-12:30
Van Capelle Zaal
SSIEM Dietitian Group members meeting
12:30-13:30
Grote Zaal
SSIEM Advisory & Council members meeting
13:30-14:30
Grote Zaal
SSIEM Annual General Assembly
13:00-14:30
Van Capelle Zaal
Nurses symposium
 Thursday 5 September 2019
PRE-CONGRESS EVENTS & SIDE MEETINGS
7:30-9:30
Zeelenberg Zaal
MMA/PA Guideline Update Group meeting
10:30-12:30
Zeelenberg Zaal
JIMD Communicating Editors meeting