Pre-Congress Events and Side Meetings
You can find an overview of the pre-congress events and side meetings below.
| Monday 2 September 2019 | |
|---|---|
| Pre-Congress Events | |
| 9:00-11:00 Van Weelde Zaal | MetabERN meeting (MetabERN members only) |
| 11:00-13:00 Van Weelde Zaal | MetabERN: LSD subnetwork meeting (MetabERN members only) |
| 11:00-13:00 Van Rijckevorsel Zaal | MetabERN: AOA subnetwork meeting (MetabERN members only) |
| 12:00-19:00 Plate Zaal | iNTD network meeting (iNTD members only) |
| 13:00-15:00 Hudig Zaal | EHOD steering committee meeting (EHOD steering committee members only) |
| 16:00-18:00 Van Weelde Zaal | EHOD members meeting (EHOD members only) |
| 16:00-18:00 Schadee Zaal | SSIEM Council meeting (SSIEM council members only) |
| 18:00-22:00 Hudig Zaal | ERNDIM Board of Trustees Meeting (ERNDIM Board members only) |
| Tuesday 3 September 2019 | |
|---|---|
| Pre-Congress Events | |
| 9:00-11:00 de Leeuw Kamer | U-IMD meeting (U-IMD members only) |
| 9:30-12:30 Zeelenberg Zaal | GalNet Satelite Symposium (GalNet members only) |
| 9:00-10:30 Willem Burger Zaal | Nutrition and Dietetics session |
| 9:00-9:30 | The use of body composition as a clinical tool in IEM Maureen Evans (Royal Children's Hospital, Melbourne, Australia) |
| 9:30-10:00 | GSD - New treatments; KD/High protein v traditional treatment Helen Mundy and Jo Gribben (Evelina Children's Hospital, London, United Kingdom) |
| 10:00-10:30 | Ketogenic diet in Inborn Errors of Metabolism: experience from one center and introduction of Ketogenic PN guideline Marit Verhagen and Elles van der Louw (Erasmus MC-Sophia Children's Hospital, University Medical Center, Rotterdam, The Netherlands) |
| 10:30-11:00 | Coffee Break |
| 11:00-12:30 Willem Burger Zaal | Nutrition and Dietetics session (continued) |
| 11:00-11:30 | Citrin Deficiency; recent developments Alex Pinto (Birmingham Children's Hospital, Birmingham, United Kingdom) |
| 11:30-12:00 | 10 year follow up of PKU: implications of dietary therapy on weight management/ metabolic syndrome. Julio César Rocha (Centro Hospitalar Universitário do Porto, Portugal) |
| 12:00-12:30 | Evaluation of UX007 in patients with severe LC-FAOD Professor Vockley (Children's Hospital of Pittsburgh, USA) |
| 11:00-13:30 de Leeuw Kamer | Newborn Screening (NBS) Advisory Board meeting (members only) |
| 9:00-10:30 Juriaanse zaal | Adult morning session: Lifestyle in adults with IMD |
| 9:00-9:30 | Exercise in adults with IMD Mark Tarnopolsky (Ontario, Canada) |
| 9:30-10:00 | Diet, overweight and obesity Sandra Sirrs (Vancouver, Canada) |
| 10:00-10:30 | Independence, parenting, non-adherence and psychosocial issues Fanny Mochel (Paris, France) |
| 10:30-11:00 | Coffee Break |
| 11:00-12:00 Juriaanse zaal | Adult morning session (continued) |
| 11:00-11:12 | Adherence to dietary treatment and psychological outcomes in adults with early-treated Phenylketonuria Lynne Aitkenhead (London, United Kingdom) |
| 11:12-11:24 | Diffusion Kurtosis Characterisation of White Matter Abnormalities in Phenylketonuria: A Study of Divergent Siblings, with a Subsequent Analysis in 22 Adults Sarah C. Hellewell (Sidney, Australia) |
| 11:24-11:36 | Coping, Health Perception And Pain Are Related To Depressive Symptoms In Fabry Disease Simon Körver (Amsterdam, the Netherlands) |
| 11:36-11:48 | Acute neurological decompensation in adults with Tyrosinemia type 1 – an emerging issue? Elaine Murphy (London, United Kingdom) |
| 11:48-12:00 | Follow-up of five, non-MELAS phenotype, adult patients with m.3243A>G mutation after kidney transplantation and a review of the literature Mirian C.H. Janssen (Nijmegen, the Netherlands) |
| 9:00-10:30 | ERNDIM DPT MEETINGS |
| 9:00-10:30 Mees Zaal | ERNDIM DPT Czech Republic meeting (DPT participants only) |
| 9:00-10:30 Van de Vorm Zaal | ERNDIM DPT France meeting (DPT participants only) |
| 9:00-10:30 Van Rijckevorsel Zaal | ERNDIM DPT Switzerland meeting (DPT participants only) |
| 9:00-10:30 Ruys Zaal | ERNDIM DPT United Kingdom meeting (DPT participants only) |
| 9:00-10:30 Plate Zaal | ERNDIM DPT The Netherlands meeting (DPT participants only) |
| 9:00-10:30 Mees & Van Weelde Zaal | ERNDIM Workshop |
| 10:00-12:00 Hudig Zaal | ETAC Meeting (ETAC members only) |
| 11:00-12:30 Mees & Van Weelde Zaal | ERNDIM Meeting (ERNDIM members only) |
| 11:00-11:30 | Program to be announced later |
| 11:30-12:00 | Program to be announced later |
| 12:00-12:30 | Program to be announced later |
| 13:00-14:00 | Program to be announced later |
| 12:30-14:00 | Lunch Break |
| 12:45-13:45 Ruys Zaal | Adult Group Board Meeting (Adult Group Board members only) |
| 12:45-14:00 Hudig Zaal | SSIEM Dietitians Group Committee meeting (SSIEM DG-members only) |
| Wednesday 4 September 2019 | |
|---|---|
| PRE-CONGRESS EVENTS & SIDE MEETINGS | |
| 7:45-8:45 Keuris / Schatkamer | ICIEM Organising Committee (IOC) meeting |
| 10:30-12:30 Van Capelle Zaal | SSIEM Dietitian Group members meeting |
| 12:30-13:30 Grote Zaal | SSIEM Advisory & Council members meeting |
| 13:30-14:30 Grote Zaal | SSIEM Annual General Assembly |
| 13:00-14:30 Van Capelle Zaal | Nurses symposium |
| Thursday 5 September 2019 | |
|---|---|
| PRE-CONGRESS EVENTS & SIDE MEETINGS | |
| 7:30-9:30 Zeelenberg Zaal | MMA/PA Guideline Update Group meeting |
| 10:30-12:30 Zeelenberg Zaal | JIMD Communicating Editors meeting |